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FSHD, one of the most prevalent types of muscular dystrophy, is a degenerative muscle Converse Chuck Taylor All Star Ii High Top
Navigating FSHD in relationships for teens and young adults (Hillary Michel, FSHD patients)
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Daniel Perez, President and CEO of The FSH Society. The FSH Societys Biennial FSHD Connect meeting is crucial to our tight knit community, and represents a special opportunity to network with experts in the space as well as interact with and learn from those affected firsthand by the disease.
disease that causes progressive weakness, usually starting with the face, shoulder and arms, but which can attack almost any skeletal muscle. FSHD affects approximately 500,000 people worldwide and between one and two percent of the population carries a genetic trait that places future generations at risk of the disease. Currently, there is no treatment or cure. The non profit has provided millions of dollars in seed grants to pioneering research worldwide, creating an international collaborative network of patients and researchers. The FSH Society seeks to serve as a source of information and support for all patients and families with FSHD; act as a driving force in the development of research directed towards treatments and ultimately a cure; and bring support to patients and research for FSHD through effective engagement of governmental and private sector organizations and entities. Converse For Men All Star For six consecutive years, the Society has received the Charity Converse All Star Sale Mens
FSH Societys International Meeting to Bring Together Patients and Researchers From Around the World to Explore New Insights on Rare Disease
Its a very rare occurrence that we are able to convene more than 200 FSHD patients, clinicians and researchers in one location, said Converse Suede Sneakers
This years meeting will feature talks by prominent leaders in the field of FSHD, including presentations from international clinical and research centers, question and answer panel sessions and educational workshops. Researchers and clinicians from the University of Massachusetts Medical School NIH Senator Paul Wellstone Center for FSHD will be in attendance, and are hoping to gather a robust set of DNA samples to be studied after the event. Paralympic athlete)
This article was originally distributed via PRWeb. The meeting, being held August 16 17, 2014 at the Westin Boston Waterfront hotel, will be one of the largest gatherings of FSHD patients, clinicians and researchers providing two days of immersive learning and community building. Massachusetts Senator Elizabeth Warren has recorded a video welcoming attendees to the meeting and expressing her support for FSHD research and awareness. Warren is also a supporter of the MD Care Act, which was recently approved by the House of Representatives and is expected to pass the Senate vote in the coming days.
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